Find support on Facebook.
You do not have to go through this journey alone. Join the "Canavan Support Network" Facebook group, an online support and discussion forum for parents whose children have been diagnosed with Canavan Disease. This group serves as a platform for parents to connect and share advice with others who are facing similar struggles.
Trade medical equipment on Facebook.
The equipment necessary to care for Canavan patients can be prohibitively expensive. To help reduce the cost of care, join the "Canavan Equipment Exchange" Facebook group. This group serves as a place where caregivers can buy and sell Canavan-care related equipment.