Find support on Facebook.
You do not have to go through this journey alone. There are two support networks on Facebook, The Parent Canavan Connection and the "Canavan Support Network" Facebook group. Both are online support and discussion forums for parents whose children have been diagnosed with Canavan Disease. They serve as a platform for parents to connect and share advice with others who are facing similar struggles.
Trade medical equipment on Facebook.
The equipment necessary to care for Canavan patients can be prohibitively expensive. To help reduce the cost of care, join the "Canavan Equipment Exchange" Facebook group. This group serves as a place where caregivers can buy and sell Canavan-care related equipment.