The mission of the Canavan research foundation is to fund and support research to cure Canavan Disease and apply these findings to create therapies for other genetic brain diseases such as Parkinson's and Alzheimer’s.

On international rare disease day, I’m sharing a picture with my little sister Lindsay, who suffers from a genetic brain disease called Canavan Disease. Lindsay may not be able to walk or talk, but she changed the face of science and saved coun

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Could these Canavan twins Yoel and Yael be any cuter? You could play a role in saving their lives at www.canavan.org. @gabili.91

This little cutie W Canavan Disease, Anna Grace is so happy because we are almost halfway to our goal for Giving Tuesday! Help little ones like Anna access gene therapy by donating today!

Love this little guy, Theo. Such a trooper!

Today is #GivingTuesday! Please consider donating to the Canavan Research Foundation today to help us on our mission to cure Canavan Disease. Visit the link in our bio for more information on our organization and to find out how you can help!

In the 11 years since our research began, the Canavan Research Foundation has raised over $2 million, all of which was acquired through fundraisers and private donations. These funds have been used to finance both research and clinical trials. Future

Canavan Disease is a progressive, fatal neurological disorder in which the brain degenerates. It is one of several devastating neurological disorders in which the brain deteriorates due to a defective inherited gene. Because it is relatively rare, Ca

MEET OLIVIA! • "Olivia was diagnosed at 6 months of age with Canavan and at the time, we did not know what to expect. She does have an atypical case of Canavan in that she can walk in a walker and stand with a stander, do minimal sign lang

Nicola Ambu has finished filming the documentary “Little Heroes” about the journey to find a cure for Canavan Disease. It is available to rent or purchase on Amazon (link in bio)! You can also view the trailer on our website or YouTube.

MEET ALYSSA! • "When she was just a little baby, doctors told my parents that she had Canavan Disease and that she wouldn't live past 5 years old, so we shouldn't get too attached. Then, she received her gene therapy (one of the first in th

WHO IS AT RISK? • For a child to contract Canavan Disease, the flawed gene must be inherited from both parents. Canavan Disease appears to be most prevalent among certain semitic cultures; Ashkenazi Jews and Saudi Arabians in particular, althoug

MEET LINDSAY! • Lindsay was diagnosed with Canavan Disease at 3 months, and is now 22 years old. She was the first person in the world to undergo gene therapy for a brain disease in 1996, and had increased myelin as a result. Lindsay goes to a V

Our mission is to fund and support research to cure Canavan Disease and apply these findings to create therapies for other genetic brain diseases such as Parkinson's and Alzheimer's. We spearheaded the world's first trial of gene therapy in the brain

LITTLE HEROES DOCUMENTARY

Nicola Ambu has finished filming the documentary “Little Heroes” about the journey to find a cure for Canavan Disease. It is available to rent or purchase on Amazon. View the trailer below!

The mission of the Canavan research foundation is to fund and support research to cure Canavan Disease and apply these findings to create therapies for other genetic brain diseases such as Parkinson's and Alzheimer’s.

LITTLE HEROES DOCUMENTARY

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