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Canavan Research in the NewsBeginning with the first gene therapy trial in New Zealand in March 1996, the Canavan Research Foundation has garnered headlines across the nation and the world. Below is a partial list of articles (with links, where available) that have appeared in newspapers, magazines, newsletters and online. Please contact us via e-mail at This e-mail address is being protected from spambots. You need JavaScript enabled to view it for additional articles, scientific abstracts and television coverage.National/International Publications"Sending genes to save a child: Pa. parents gamble on an unproven therapy to give their infant daughter a normal life" "Ten Years of Progress: The Forward looks back at the strides that have been made in the fight against Jewish genetic diseases" By Miriam Colton The Forward August 20, 2004 "Girl improving three months after surgery" Associated Press USA Today July 30, 2003 "Girl's family pleased with experimental treatment" Associated Press USA Today June 19, 2003 "Gene Therapy May Be Key to Unlock Canavan's Disease" By Cherie Bank NBC News April 10, 2003 "Gene Therapy Targets Canavan Disease: Clinical trial is first to use recombinant viruses in the brain to prevent neurodegeneration" By Douglas Steinberg The Scientist September 17, 2001 "Gene Therapy Offers a Family Hope" By Faye Flam The Philadelphia Inquirer July 6, 2001 "Discovery of Canavan Rat Thrills Researchers" By Caryn Tamber The Forward August 18, 2000 "Caution Over Gene Therapy Puts Hopes on Hold" By Rick Weiss The Washington Post March 7, 2000 "Canavan Children Are Holding Their Own, Parents Say: Gene Therapy Increases Their Alertness, Appears to Stop Progress of Deadly Disease" By Elizabeth Schainbaum The Forward August 20, 1999 "Doctors Urge Screening for Disorder" By Steven Greenhouse New York Times Magazine April 27, 1999 "Fighting for Jacob" By Michael Winerip New York Times Magazine December 6, 1998 "Technique for Rare Disorder Offers Hope for Others Who Lose Brain Functions Because of Various Diseases" By Thomas H. Maugh II The Los Angeles Times July 2, 1998 "Pioneering Brave New World of Gene Therapy" The Forward August 23, 1996 "Coping; A Postcard from Morgan's Twilight World" By Robert Lipsyte New York Times Magazine April 14, 1996 "Tailoring Genes to Bring Hope" By Simon Robinson TIME Magazine March 25, 1996 "Genes Injected into Toddlers' Brains to Slow Disease" Agence France-Presse South China Morning Post March 7, 1996 "Hospital to pioneer gene therapy for fatal brain disease" By Fiona Barber The Auckland Herald March 1996 "Hope in a New Treatment for a Fatal Genetic Flaw" By Matthew Hay Brown The New York Times October 29, 1995 Regional Publications"Buffalo Grove women to donate contest win of $50,000 to charity"By Ruth Gesmer Silverman The Daily Herald June 2, 2006 "Harrison child fighting rare brain disease" By Liz Sadler The Journal News April 24, 2006 "Battling for a Cure" By Julian Kesner New York Daily News April 13, 2005 "Leone's Love Affair" By Maryann B. Brinley UMDNJ Magazine Spring 2005 "Special Delivery, Destination: The Brain" By Anton Zuiker Endeavors Magazine, UNC Chapel Hill School of Medicine 2005 "Stem cell policy sparks hope, fury: Parents see progress in daughter's fight with Canavan disease" "Scientists, politicians seek to bolster cases on future research" By Robert Miller The News-Times August 10, 2004 "Improving a life: Rare disorder responds to gene therapy" By Czerne M. Reid Milwaukee Journal Sentinel July 25, 2004 "Saving Lana: W. Columbia toddler recovering one year after surgery" By Scott Hawkins WIStv.com June 28, 2004 "It's in the Genes: Panel to discuss genetic testing, dilemmas" By Robert Miller The News-Times March 14, 2003 "Exploring 'uncharted territory': Connecticut family on cutting edge of gene therapy" By Mara Dresner The Jewish Ledger March 7, 2003 "A Survivor’s Story" By Jill Kaiser Dion Better Health Magazine, Hospital of St. Raphael March/April 2002 "Genetic Breakthrough: Girl with rare, incurable disease improving with new treatment" By Robert Miller The News-Times February 24, 2002 "New Genes Provide Hope to Palatine Boy " By Ruth Gesmer Silverman Daily Herald July 5, 2001 "Gene therapy gives girl strength to fight disease" By Robert Miller The News-Times July 3, 2001 "Promising gene therapy for brain illness to begin" By Kelly Lecker Toledo Blade June 5, 2001 "Hope for always-fatal kids' illness: Gene therapy is a major factor in race with rare Canavan disease" By Robert Miller The News-Times "Canavan disease sufferer waiting for gene therapy" By Robert Miller The News-Times June 3, 2001 "Genome exhibit teaches of then, now, someday" By Robert Miller The News-Times June 3, 2001 "Rocco's Fundraiser Kicks Off Summer" The New Milford Times June 2001 "Fighting a rare disease" By Debi Pittman Wilkey The Town Journal May 25, 2001 "'48 Hours', museum to feature local girl with rare disease" By Robert Miller The News-Times May 1, 2001 "FDA approval of gene transplant gives new hope to Canavan sufferer" By Ruth Gesmer Silverman JTA - Global Jewish News April 24, 2001 "Parents of victims plead for a concerted effort against a rare disease" By Teresa M. McAleavy North Jersey Herald News April 16, 2001 "FDA Approves Experimental Gene Therapy" Local 10 News (Florida) April 10, 2001 "Families Coping" By Cindy Sher Chicago Jewish Community Online April 3, 2001 "A family clings to hope: Parent pleads for cure for Brianna's 'orphan' illness" By Kelly Lecker Toledo Blade March 11, 2001 "In Initial Gene Therapy Trial, Jefferson Scientists Report Successful Gene Transfer in Canavan Disease" Thomas Jefferson University Hospital July 31, 2000 "Karlin Family Finds Joy in Four Daughters: Lindsay Makes the Difference to Others with Canavan Disease" By Denise Kapner The Citizen News September 29, 1999 "Gene therapy 'miracle' helps New Fairfield tot" By Robert Miller The News-Times May 11, 1997 "Yale Researchers Pioneer Neurological Gene Therapy" By Shalini Mimani The Yale Herald March 29, 1996 "Hope attends trial treatment for Canavan's" By Robert Miller The News-Times March 24, 1996 "Karlins to Go to New Zealand to Seek Daughter's Cure" By Lisa Toussaint The Citizen News November 1995 "Baby's life hangs on experimental surgery" By Robert Miller The News-Times October 14, 1995 Online Publications"Hope on Horizon for South Carolina Toddler to Undergo Brain Transfer Surgery; Youngest Patient Ever to Receive Canavan Disease Therapy"Kandaker Partners: Independent Research and Advisory April 23, 2003 "Jefferson researchers use gene therapy for rare, inherited brain disorder" Science Blog.com July 2001 "Girl's Parents Plead for Gene Therapy to Resume" By Miriam Colton WebMD.com September 27, 2000 "Advisors Raise No Stop Sign to Gene Therapy" By Jeff Levine WebMD.com March 10, 2000 "Government Panel Considers Future of Gene Therapy Research" By Dave Cureton Cancerpage.com March 9, 2000 "Jefferson Neurosurgeons Use Gene Therapy to Treat Rare, Inherited Brain Disease" Jeff News Online, Thomas Jefferson University May 1998 |
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