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Photo Gallery

Click on the links below for pictures and biographies of some of the Canavan children, many of whom have taken part in the gene therapy trials spearheaded and supported by the Canavan Research Foundation. If not for this research, some of these children would likely not be alive today. Although we are in contact with many Canavan families, we believe that many other Canavan children remain undiagnosed, both in the United States and worldwide.


Danielle Christine Alter


Dominic Andrews


Allie Elizabeth Bailey


Nicholas Breedon


Gershon Brickner


Brianna Burkett


Piotr Chomicz


Ariel Maqenzie Coover


Calum Ross Craghill *


Joseph Cross


Rodrigo & Ana Paula Cuestas


Kaitlyn Delobel


Keegen Doty *


Kevin Driessen


Rachel Epstein


Ashtyn Fellenz


Sam Fitzgerald *


Ben Fletcher


Hannah Geisinger


Anthony Cruz Gingera *


Asher Gluckman


Lisette Guth


Lloyd Philip Paul Humphries


Lindsay Karlin


Shari Knobler


Angela Larson


Alexandra Lyubarsky


Devin Mitchell McCartney


Vitória de Castro Molina


Maya Moreno


Alyssa Mushin


Katarzyna Najder


Natasha Nippard *


Hailey Oller


Balázs Pap


Briana Renee Petrovic *


Paulani Quinata-Barcinas


Benjamin Quinn


Max Randell


Jacob Schwartz


Kyle Seay


Maxim Sher


Jacob Sontag


Celeste Haven Stern


Lana Swancey


Brooklyn Van Skoyck


Vincent McVeigh Warden


Adrianek Weis


Davion Williamson


Emma Winograd *


Amadeo Zabala

Awaiting photos:

  • Julie Boelter
  • James Coble
  • Stephanie Fuentes
  • Alexandra Galanis
  • Gregory  Kagay
  • Daniel McAfee
  • Dylan Oser *
  • Marcel Perolada
  • Jamie Tyler
  • Owen Weaver *
  • Carly & Hanna White
  • Riley & Dylan Wolff

* passed away

To add your child to the photo gallery or to update your child's picture and information,
please e-mail mkarlin@canavan.org.