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	Topics Replies Views   Last Post Canavan disease treatment by Balrog on 14-11-2011 00:59:27 0 189 Canavan disease treatment  by Balrog on 14-11-2011 00:59:27 coughing spell by arva on 16-09-2011 04:58:11 0 87 coughing spell  by arva on 16-09-2011 04:58:11 Swollen tissue around the G Tube by Sarpsmom on 05-01-2010 06:04:33 6 2927 Re:Swollen tissue around the G Tube  by Debby on 21-08-2011 08:05:42 airway clearance system by arva on 23-06-2011 12:57:13 0 173 airway clearance system  by arva on 23-06-2011 12:57:13 UTI's and antibiotics by Sally on 19-12-2010 14:59:50 3 379 Re:UTI's and antibiotics  by Sally on 11-03-2011 01:08:09 Pupil of Eye by Sarpsmom on 15-02-2011 08:44:53 2 298 Re:Pupil of Eye  by snwboardchik947 on 24-02-2011 22:37:46 Tell me your Canavan story! by Kim@ntsad.org on 02-11-2010 12:28:50 3 516 Re:Tell me your Canavan story!  by snwboardchik947 on 27-01-2011 22:31:35 Happy Birthday Ben by Sally on 24-01-2011 15:28:55 3 298 Re:Happy Birthday Ben  by Lillianasmom on 27-01-2011 16:03:50 taking your child out of school for the winter by snwboardchik947 on 26-01-2011 22:13:57 1 254 Re:taking your child out of school for the winter  by Sally on 27-01-2011 05:05:30 Many questions And No Answer by Sarpsmom on 16-08-2010 01:21:00 8 1161 Re:Many questions And No Answer  by Lillianasmom on 26-01-2011 08:20:15 $250,000 for Canavan research? by sarahemily on 08-01-2011 16:01:23 0 225 $250,000 for Canavan research?  by sarahemily on 08-01-2011 16:01:23 PGD by Maddie08 on 20-10-2010 15:37:52 4 642 Re:PGD  by CelesteMom on 05-01-2011 14:06:54 28 years old by Sylvia on 13-11-2010 16:42:25 4 536 Re:28 years old  by arva on 20-12-2010 11:50:16 Happy Christmas by Sally on 19-12-2010 15:00:46 0 224 Happy Christmas  by Sally on 19-12-2010 15:00:46 Happy thanksGiving! by snwboardchik947 on 25-11-2010 09:00:32 1 312 Re:Happy thanksGiving!  by lovemyboys on 29-11-2010 15:47:11 Urine retention by Sally on 10-11-2010 01:05:06 0 278 Urine retention  by Sally on 10-11-2010 01:05:06 teeth by snwboardchik947 on 09-11-2010 12:33:36 2 387 Re:teeth  by snwboardchik947 on 09-11-2010 20:00:17 Has anyone had a mitrofanoff? by Sally on 03-11-2010 05:44:53 0 307 Has anyone had a mitrofanoff?  by Sally on 03-11-2010 05:44:53 entertaining Maddie by Maddie08 on 20-10-2010 15:28:06 4 588 Re:entertaining Maddie  by snwboardchik947 on 02-11-2010 20:06:22 Catheter? by Sally on 02-11-2010 06:58:45 1 374 Re:Catheter?  by lovemyboys on 02-11-2010 10:40:47 Contact details by Sally on 30-10-2010 05:16:41 0 324 Contact details  by Sally on 30-10-2010 05:16:41 urinary problems by Sally on 30-09-2010 14:55:35 4 671 Re:urinary problems  by snwboardchik947 on 05-10-2010 14:53:03 Insurance Coverage for nurses at home by Sarpsmom on 13-08-2010 02:03:22 4 736 Re:Insurance Coverage for nurses at home  by Lillianasmom on 10-09-2010 02:21:18 Harleegrace is going in for surgery by snwboardchik947 on 30-08-2010 22:41:14 1 466 Re:Harleegrace is going in for surgery  by snwboardchik947 on 04-09-2010 18:36:37 harleeGrace got admitted to hospital by snwboardchik947 on 12-08-2010 22:35:00 2 572 Re:harleeGrace got admitted to hospital  by Sally on 30-08-2010 15:02:04 GJ tube by lovemyboys on 30-07-2010 09:33:09 7 1004 Re:GJ tube  by Sally on 30-08-2010 14:44:35 Pauls 3rd birthday! by snwboardchik947 on 27-08-2010 16:48:17 1 433 Re:Pauls 3rd birthday!  by Sally on 30-08-2010 14:38:50 Lilliana got a wheelchair :) by Lillianasmom on 06-05-2010 16:47:31 4 990 Re:Lilliana got a wheelchair :)  by Sarpsmom on 10-08-2010 03:05:43 Can we talk about vans and lifts? by CelesteMom on 01-08-2010 08:27:27 3 667 Re:Can we talk about vans and lifts?  by steve on 07-08-2010 10:49:47 Muscle contractures by Sally on 01-08-2010 09:06:05 0 422 Muscle contractures  by Sally on 01-08-2010 09:06:05 bad mommy! by vincent on 21-07-2010 12:11:13 4 770 Re:bad mommy!  by CelesteMom on 01-08-2010 08:24:50 Canavan Conference by sarahemily on 21-06-2010 11:25:52 6 977 Re:Canavan Conference  by sarahemily on 28-07-2010 13:52:57 Removing tonsils & adenoids-botox for secretions by lovemyboys on 13-07-2010 14:43:19 5 1244 Re:Removing tonsils & adenoids-botox for secretions  by Sally on 25-07-2010 14:48:37 Hershey Park Penn. by snwboardchik947 on 12-07-2010 07:46:51 0 458 Hershey Park Penn.  by snwboardchik947 on 12-07-2010 07:46:51 Disneyworld? by vincent on 07-07-2010 20:40:01 2 610 Re:Disneyworld?  by Sally on 08-07-2010 04:46:57 tommy by tomsmom on 21-06-2010 10:43:55 4 896 Re:tommy  by Sally on 03-07-2010 01:25:34 Seizures and O2 by lovemyboys on 21-06-2010 10:42:13 4 936 Re:Seizures and O2  by Sally on 03-07-2010 01:22:30 Sight by steve on 27-06-2010 11:20:24 4 809 Re:Sight  by Sally on 03-07-2010 01:18:19 Have a Question to Sally by Sarpsmom on 04-06-2010 04:49:04 1 630 Re:Have a Question to Sally  by Sally on 03-07-2010 01:15:42 paul and HarleeGraces new website by snwboardchik947 on 21-06-2010 14:09:48 1 587 Re:paul and HarleeGraces new website  by sarahemily on 22-06-2010 09:26:25 sleepy by arogers10 on 12-01-2010 15:42:36 10 2381 Re:sleepy  by steve on 15-06-2010 22:15:13 teeth by Lillianasmom on 10-04-2010 19:12:28 3 976 Re:teeth  by steve on 12-06-2010 12:13:10 Happy birthday HarleeGrace by snwboardchik947 on 08-06-2010 21:31:46 1 589 Re:Happy birthday HarleeGrace  by lovemyboys on 09-06-2010 17:23:46 Happy Birthday to Lilliana!!! by Lillianasmom on 06-05-2010 16:57:29 2 703 Re:Happy Birthday to Lilliana!!!  by Sally on 03-06-2010 00:57:50 CD specialist in Calif? by Kim@ntsad.org on 26-05-2010 14:11:59 1 568 Re:CD specialist in Calif?  by vincent on 29-05-2010 13:53:08 Salt Therapy AKA helotherapy??? by Debby on 10-05-2010 09:00:31 1 591 Re:Salt Therapy AKA helotherapy???  by Sarpsmom on 13-05-2010 07:27:17 General Questions Regarding treatment of Canavans. by mithilwane on 05-05-2010 01:24:23 1 701 Re:General Questions Regarding treatment of Canavans.  by Debby on 10-05-2010 09:04:56 Using antibiotics by Sarpsmom on 13-04-2010 04:35:22 7 1163 Re:Using antibiotics  by vincent on 26-04-2010 13:40:04 talking by Lillianasmom on 05-12-2009 21:43:36 6 1325 Re:talking  by DeclansMom on 12-04-2010 22:29:04 Blog Entries Wanted by sarahemily on 02-04-2010 14:34:17 0 669 Blog Entries Wanted  by sarahemily on 02-04-2010 14:34:17 Time if of the essence by give2lavi on 15-03-2010 10:18:09 0 659 Time if of the essence  by give2lavi on 15-03-2010 10:18:09 Question on Vomiting by DeclansMom on 07-03-2010 21:30:39 6 1199 Re:Question on Vomiting  by DeclansMom on 11-03-2010 20:47:10 FYI-Bladder/kidney *mostly for older kiddos* by arogers10 on 04-02-2010 12:26:56 4 1495 Re:FYI-Bladder/kidney *mostly for older kiddos*  by Sally on 03-03-2010 01:12:50 Websites by sarahemily on 09-02-2010 11:24:24 2 932 Re:Websites  by sarahemily on 18-02-2010 10:10:31 Sarp hospitalized again by Sarpsmom on 29-01-2010 05:20:12 4 1120 Re:Sarp hospitalized again  by sam on 02-02-2010 13:06:39 Happy Birthday Ben ! by Sally on 23-01-2010 01:11:30 5 1102 Re:Happy Birthday Ben !  by Sarpsmom on 26-01-2010 02:49:38 gene mutation by snwboardchik947 on 13-12-2009 20:40:09 8 1775 Re:gene mutation  by Patty on 25-01-2010 19:22:48 new jersey by Lillianasmom on 10-01-2010 02:17:07 4 1403 Re:new jersey  by snwboardchik947 on 23-01-2010 12:08:53 Ben's story by Sally on 15-01-2010 05:12:43 3 1045 Re:Ben's story  by DeclansMom on 18-01-2010 20:44:24 what is the vojta method? by Lillianasmom on 10-01-2010 02:47:01 1 978 Re:what is the vojta method?  by Sally on 15-01-2010 05:02:02 How diagnosis is made by threebabies on 14-12-2009 17:30:39 6 1278 Re:How diagnosis is made  by Sarpsmom on 13-01-2010 01:37:50 Doctor in California or Texas by paulanis mom on 08-01-2010 04:12:26 9 1489 Re:Doctor in California or Texas  by paulanis mom on 12-01-2010 21:06:39 throwing up all the time constanley by snwboardchik947 on 09-12-2009 16:16:53 15 2272 Re:throwing up all the time constanley  by sam on 12-01-2010 14:32:31 Rehabilitation / Exercising Technics for Canavan Children_Question by Auntie_09 on 08-01-2010 10:20:56 1 705 Re:Rehabilitation / Exercising Technics for Canavan Children_Question  by Lillianasmom on 10-01-2010 02:40:37 calories and water intake??? HOw much are your kids getting? by Debby on 27-12-2009 03:09:40 4 1070 Re:calories and water intake??? HOw much are your kids getting?  by Patty on 01-01-2010 20:23:04 rapid eye blinking by Lillianasmom on 31-12-2009 00:39:00 2 964 Re:rapid eye blinking  by snwboardchik947 on 31-12-2009 15:20:08 toilet talk :p by Lillianasmom on 08-12-2009 00:23:05 6 1338 Re:toilet talk :p  by Lillianasmom on 31-12-2009 00:23:48 Happy Healthy New Year! by arogers10 on 30-12-2009 14:54:44 0 878 Happy Healthy New Year!  by arogers10 on 30-12-2009 14:54:44 Paul got amitted to the hospital tonight by snwboardchik947 on 14-12-2009 21:17:38 5 1112 Re:Paul got amitted to the hospital tonight  by Debby on 28-12-2009 01:54:51 formula by snwboardchik947 on 18-12-2009 21:33:50 0 1419 formula  by snwboardchik947 on 18-12-2009 21:33:50 Older child ?'s by lovemyboys on 01-12-2009 11:14:21 11 2258 Re:Older child ?'s  by snwboardchik947 on 16-12-2009 16:17:05 Desperate for help by threebabies on 14-12-2009 12:34:34 4 1055 Re:Re:Desperate for help  by threebabies on 14-12-2009 17:25:19 Surgery by Sally on 23-11-2009 15:20:19 14 2000 Re:Surgery  by Sarpsmom on 06-12-2009 05:12:04 being more active/happy at night by Lillianasmom on 05-12-2009 21:30:55 2 786 Re:being more active/happy at night  by Adyonline on 06-12-2009 01:51:14 chewing by Lillianasmom on 05-12-2009 21:18:46 2 896 Re:chewing  by Adyonline on 06-12-2009 01:42:35 TREATMENT by Lillianasmom on 05-12-2009 21:13:26 1 833 Re:TREATMENT  by snwboardchik947 on 05-12-2009 22:35:14 fundraising by Lillianasmom on 05-12-2009 21:38:11 0 680 fundraising  by Lillianasmom on 05-12-2009 21:38:11 Ben by Sally on 23-11-2009 15:22:41 6 1484 Re:Ben  by Sarpsmom on 05-12-2009 08:45:32 Eye fluttering by snwboardchik947 on 23-11-2009 19:52:28 5 1436 Re:Eye fluttering  by Sarpsmom on 05-12-2009 07:07:10 Body Massage by snwboardchik947 on 02-12-2009 20:26:18 0 726 Body Massage  by snwboardchik947 on 02-12-2009 20:27:59 Website Launched - feedback, ideas and pictures please by Adyonline on 13-11-2009 12:30:12 6 1405 Re:Website Launched - feedback, ideas and pictures please  by Sally on 23-11-2009 15:18:22 Media coverage... by vincent on 19-11-2009 09:04:15 3 919 Re:Media coverage...  by Sally on 23-11-2009 15:15:08 Website Photos by Patty on 20-11-2009 21:14:21 2 937 Re:Website Photos  by Patty on 21-11-2009 19:05:58 New families... by vincent on 19-11-2009 18:05:59 1 1036 Re:New families...  by Adyonline on 20-11-2009 12:36:06 New website - Hi by Sally on 14-11-2009 01:29:45 0 696 New website - Hi  by Sally on 14-11-2009 01:29:45
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