Hi Everybody,

Sarp started to breathe very nosiy in recent days but he hasn't got any infection in the lungs. His Oxigen level is low and supporting him with Oxigen for 2 days.

The day before yesterday his right eye was very strange. The pupil of the right eye was too big and the left was normal. The next day we have faced opposite situation that left was big but right was normal.

And one more think we have been having recently is shacking of legs and arms. When he is sitting or lying there is nothing wrong but when you touch him to change his position or hold him, his legs and hands are start to shake till we stop it by hand.

Have you ever had such a strange history with your children? I need some advise till we get the EEG test results.

Hugs to all,

HI

Ben's legs shake regularly throughout the day and we have to stop them but pointing his toes upwards which releases the tension.

I wonder from your description whether Sarp may be having a seizure.  Ben's seizures are not like epileptic fits and especially were not when he was younger.  He had a EEG which didn't show anything but he definetly has seizures.  I just mean to say if your EEG is fine don't rule it out, happily Ben's seizures are well controlled on phenobarbatone once daily and Tegretol twice daily and he rarely has one now because even if he is vomiting we use instead tegretol suppositires so his medicine levels drop too low.

Hope you get some answers

Best wishes

Sally Fletcher x

sally

my sons legs shake throught the day all the time i didnt know if it just a leg spasim or what i do need to talk to the doc soon about it