Ben had his latest bottox treatment last week.  This went really well and although he had a GA he was in and out of hospital in under 7 hours (due to his pushy mother!).  Ben's wrists are starting to turn inwards and his hands hang down this year which they hadn't done before.  I was upset that the consultant said that Ben now has contractures in his left wrist aswell as his legs so she told me not to expect the bottox to have as good an affect as previously in that area.  We keep stretching Ben's body every day but still the contractures are coming and I worry about decline as he gets older.  I just wonder what other families experiences are please?

Sally & Ben x