Hello all,

Welcome to the new Canavan Reasearch Foundation website.There are a few ideas which have not yet been implimented which includes a section for newly diagnosed canavan families.

Please do not hesitate to let me know your thoughts and ideas regarding the site. Also if anyone can provide some good quality photos with a size of at least 1280 x 1024 it would be much appreciated.

Thanks,

Adrian

The new site looks great.  Thank you Adrian and Molly for your hard work.

Brenda

Thank you for all of the hard work you've done - the new site looks great. I've missed having it!

Hi all,

Thanks for the comments and I hope you are finding the site easy to use. It's good to see so many have registered already.

If you have any trouble uploading pictures then please either send me the picture I will upload for you, or I can help sort the problem.

Cheers,

Adrian

We look forward to many more discussions on line. Thanks for getting the site back up!

Debby

Hello everyone , glad the site is back !!!

so I can let you all know Kevin is 27 years old since last week !!

still happy and doing well , he even went with us on a short vacation to France a few weeks ago .

He has had a few cold's this last year , but he was strong enough to fight himself back .

Hope I will learn how to use it fast , with some help from Adrian.

by  by  Kevin and Sylvia

Hi Sylvia

Great to see you on the site and Happy Birthday to Kevin.

Sylvia I tried to email you many weeks ago but the address that was on the old site did not seem to work.

I have written with Adrian a website about our son Ben.  I have put a link on the site to the television feature about Kevin because I was so impressed with you all and lots of our friends are to, I wanted to ask your permission so I do hope this was ok?  The site is www.allaboutben.co.uk

Best wishes

Sally Fletcher

Mum to Ben, wife of Adrian