for awhile now lilliana has had runny poop and her diapers dont hold it.  does anyone else have this problem.  she is on CoQ10 with L carnatine (its part of the canavan cocktail) one of her doctors thought that it was the cause of the problem.  we have tried all different diapers pampers are ok but not huggies.  right now shes in size 3 and 4 so when she gets bigger what diapers do you use.  because im sure none of our kids would ever use the toilet would they? also shes almost out grown her changing table how do you change the kids when their bigger?

First, I would make sure she is getting enough fluid just in case all the runny poops could be dehydrating her.  Nicholas is 11 and weighs 45 pounds.  He wears Pampers size 7 during the day and XS Juvenile diapes at night.  To my knowledge there are not any children that can use a toilet on their own.  Hope this helps.

Brenda

paul has always had liquid diapers we use miralax everyday he is in size 4 been in those quiet a while now he always goes through his diaper and use gas x for gas because he gets bad gas pains he dont past gas on his own some time he does but we have to sometimes push on his tummy so he can bypass  gas on his own (Nicholas's mother)-where do you get size 7 diapers at?  just for future ref.

heidi

so paul is constipation so you give him miralax.  did his doctor say its ok to give that isnt there something else. is paul on the canavn cocktail (lithuim, CoQ10, ect...) because the CoQ10 would probably be a more natural way for him to keep things moving. we give Lilliana 22 ml daily. feel free to contact me if you want Tippyrose16@aol.com 920-779-5903 :)

Tiffany

Tiffany paul doesnt take the canavan cocktail pauls doc does not recommend it for him he def perscribed him miralax sence he was 4 months HarleeGrace is also on it as well her stool is pasty pauls when he was younger he past bowls but they were thicker than usual so we give him miralax even though we give him 2 teaspoons a day he bowels every day but it very very liquidy it drips out of his diapers we always know when paul and harleeGrace bowel because a red ring forms around there eyes and they look very serious like they are trying to poop harleegrace does strain she makes noises but right after they poop they get very happy like it was a relief from them

I do not about the Canavan cocktail, but if Lithium is part of it, you need to make sure his level is not elevated as side effects of Lithium toxicity is diarrhea, and can even be present without high levels. (That is from the psychiatrist in me talking and not the parent) I would have it checked out, some of the other symproms from toxicity would not be noticed as our kids don't walk. Kidneys are pretty important, and Li though a great drug, can do a number on the kidneys and thyroid, though I am sure you were told about that before you started any combination with lithium.

Debby

Gershie's mom 

Lillianas tyroid( and some other things)are monitered every months through blood test. we are also going back to NJ and NY the week of Jan 17 so we'll see whats going on. but i didnt know about the diarrhea. she always has loose poop but we thought it was from the CoQ10 with L carnitine.