Do the majority of the kids go to New Jersey to see Dr. leone.  Lilliana started last january and she goes back again in this january.  we were suppose to go every 3 or 4 months but i think because i was pregnant she didnt feel we should go until the baby was born. if you dont work with the doctors in New jersey who do you see and how do they know what to do?

<3 Tiffany

paul and HarleeGrace dont see dr leone we have spoke to her in the past and were going to see her but she didnt have any trials going on but our nerologist is very close with her and what ever she is updated with he tells us everything in the future we will probably see her but for now we see Dr eichler out of massachusetts general hospital he is very good he goes the other countrys every 6 months to find out more info and cures for the disease he is great