on monday harleegrace was admitted and we thought it was time she needed g/j tube due to her not eating and screaming crying while eating her barium swollow came back fine and come to find out she has open sores in her mouth and 2 small holes under her tongue from her teething and biting down on the nipple the doctors changed her formula to the same as pauls peptamen jr w/ fiber and she is tolirating it better they said they sores sould go away within 2 weeks but it just sucks that she still has to eat threw the pain and i hate seeing her scream and cry while she eats...they were going to place a ng tube but they said since she is eating it is not necessary and they tryed geting an iv in her poked her 7 times and no luck we just got home today and she is happy to be home 4 days in the hospital it was crazy

So sorry to hear about HarleeGrace.  It's tough when you think it might be time for the tube.  I hope the the sores in her mouth go away quickly and she is able to eat without any pain.  Big hugs.

Brenda

Hi

Ben still bits his mouth a lot.  He has the habit of chewing whenever he is tired.

We had some great cream called adcortyl in orabase, this is a thick cream that you hold on the wound for 30 seconds and it forms a seal over it and the steroid in the cream reduces the swelling in the wound, so it goes down quick and you don't keep catching it.  Annoyingly in the UK they have stopped making it recently so we can only get plain orabase now, it still seals the wound nicely and helps but isn't as good, I wonder if you can get it in the US.

Secondly Ben's dentist makes a mouth guard for him by taking an impression of his top teeth and making a thin shield that we put over his top teeth whenever he is tired and chewing so that when he does accidentally catch himself the bit doesn't do as much damage.  Hope you know what I mean, if not there's a picture on his website.  www.allaboutben.co.uk

Hope Harleegrace feels better soon.

Sally & Ben x