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Hi there- sorry to hear about the reoccuring pnuemonia. The amoxicillian used as part of the Canavan cocktail (a Quinn family discovery!!) is not used to prevent illness in lowers the glutamate level which helps with tone. It will not prevent pnuemonia, in my opinion.
Lots of chest pysiotherapy, proper positioning when eating and a gtube insertion does help immensely but it is a constant battle. Also, an anti reflux medicine such as prevacid taken daily should be a good start. Best of luck.
Abby and Benjamin
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