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Hello all!
As part of our new website launch, (http://www.jacobscure.org/) we have started a blog and we are doing a series where each month we will have one Canavan family write a guest blog entry. Our first one, from the Ben Moshe family, just went up yesterday. I know I have spoken with many of you, but if anyone else is interested in writing something for us, please email me at sarah@jacobscure.org or leave a message here. You can see the first entry here!
http://jacobscure.net/blog/2010/04/01/a-personal-exoduscanavan-family-spotlight-april-2010-lavi-ben-moshe/
and the main blog page is
http://www.jacobscure.net/blog
We hope this will give many of our friends and donors a better understanding of what it is like for families living with Canavan disease. Please feel free to share with your networks as well.
Best,
Sarah Goshman
Assistant Director
Jacob's Cure |