Banner
  • Narrow screen resolution
  • Wide screen resolution
  • Wide screen resolution
  • Increase font size
  • Default font size
  • Decrease font size
 Canavan Research Foundation :: Main
Welcome Guest   [Register]  [Login]
 Subject :Blog Entries Wanted.. 02-04-2010 14:34:17 
sarahemily
Joined: 09-02-2010 11:18:59
Posts: 10
Location

Hello all!

 

As part of our new website launch, (http://www.jacobscure.org/) we have started a blog and we are doing a series where each month we will have one Canavan family write a guest blog entry.  Our first one, from the Ben Moshe family, just went up yesterday.  I know I have spoken with many of you, but if anyone else is interested in writing something for us, please email me at sarah@jacobscure.org or leave a message here.  You can see the first entry here!

http://jacobscure.net/blog/2010/04/01/a-personal-exoduscanavan-family-spotlight-april-2010-lavi-ben-moshe/

and the main blog page is

http://www.jacobscure.net/blog

We hope this will give many of our friends and donors a better understanding of what it is like for families living with Canavan disease. Please feel free to share with your networks as well.

 

Best,

Sarah Goshman

Assistant Director

Jacob's Cure

Page # 


Powered by ccBoard


Login