Hi

Just to let everyone know that I have now finished writing Ben's story on his website and uploaded the first of his home movies showing his development, therapies etc from ages 0-3yrs.

If anyone feels they would like to register on his site or write a comment on his guest book that would be appreciated because some of our professionals here in the UK do view our site and I am always trying to prove to them that I am not bonkers and that other people with Canavan disease have similar symptoms to Ben.

Best wishes

Sally & Ben x

Hi Sally,

It will be helpful to me if you can write down the address of Ben's page. I am looking forward to visit that page.

thanks!

www.allaboutben.co.uk

Sorry for that!!!!!

Bihter

Hi Sally,

Sorry to have been out of touch for so long.  I will check out the site and email you this week.

All my best to your family for a Happy and Healthy New Year,

Lara